Tag Archives: update

Turn, Turn, Turn

Life is so weird, right? It is jam-packed and can be hard to come up for air. I’m stunned at how much time has passed since my last post. I’ll spare the excuses, even though I have a terrible guilt complex and to not apologize is as foreign to me as littering or slamming the door in someone’s face.

Anyways, I hope that you all are doing well. I’m doing alright, though continuing to deal with some health issues. I’m still being treated for Crohn’s in my lungs. I’m on immunosuppressants and prednisone (along with a slew of other things). As I’ve experienced in the past with prednisone, my body is changing and puffing up. Not too much, but enough that my clothes are snug and my face is bloated. I hate that!! I’m sure many of you have dealt with that as well.

I’m fortunate since my abdomen isn’t changing so much that it causes trouble getting a good seal for my appliance. Be thankful for those little things.

But, it has made me appreciate the importance of having clothes that I can wear when I’m bloated vs. when I’m not. Or even for those days when I have a higher output or when I don’t. I don’t advocate having two wardrobes, but I do think it is important to know what you can quickly change into if you hurriedly get dressed for work only to find that you can’t get the zipper up on a pair of pants. For me, it is usually pulling on a looser dress, or putting on a suit jacket or sweater.

I need to work on the odd vanity issues that are coming up for me about my face. I  feel so self-conscious about it, and then get annoyed at myself for feeling that way. In the past I’ve been on very high doses of prednisone,  and had much more severe form of facial rounding. Even so, I feel very aware that “my face is not my own.” I’ll be ok, but a looking forward to feeling like myself sometime soon.