Category Archives: Update

Turn, Turn, Turn

Life is so weird, right? It is jam-packed and can be hard to come up for air. I’m stunned at how much time has passed since my last post. I’ll spare the excuses, even though I have a terrible guilt complex and to not apologize is as foreign to me as littering or slamming the door in someone’s face.

Anyways, I hope that you all are doing well. I’m doing alright, though continuing to deal with some health issues. I’m still being treated for Crohn’s in my lungs. I’m on immunosuppressants and prednisone (along with a slew of other things). As I’ve experienced in the past with prednisone, my body is changing and puffing up. Not too much, but enough that my clothes are snug and my face is bloated. I hate that!! I’m sure many of you have dealt with that as well.

I’m fortunate since my abdomen isn’t changing so much that it causes trouble getting a good seal for my appliance. Be thankful for those little things.

But, it has made me appreciate the importance of having clothes that I can wear when I’m bloated vs. when I’m not. Or even for those days when I have a higher output or when I don’t. I don’t advocate having two wardrobes, but I do think it is important to know what you can quickly change into if you hurriedly get dressed for work only to find that you can’t get the zipper up on a pair of pants. For me, it is usually pulling on a looser dress, or putting on a suit jacket or sweater.

I need to work on the odd vanity issues that are coming up for me about my face. I  feel so self-conscious about it, and then get annoyed at myself for feeling that way. In the past I’ve been on very high doses of prednisone,  and had much more severe form of facial rounding. Even so, I feel very aware that “my face is not my own.” I’ll be ok, but a looking forward to feeling like myself sometime soon.

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Update

So, hello! Despite writing many blog posts in my mind over this embarrassingly long absence, I never actually wrote those posts. Yeah…lame, I know! At any rate, here I am. Lots has happened since my last post which was, golly, almost exactly a year ago. Being a working mommy to three is challenging! It is great, but challenging. Also, I received a promotion at work that is very exciting, but it really has me jumping.

On top of all of that, I’ve been dealing with some health issues. Although my Crohn’s has been very calm for quite a long time, like over 15+ year, I’ve had some serious respiratory problems for the last five years. After bouncing from doctor to doctor, I am finally seeing some doctors who are trying to get to the bottom of it. Guess what they have found? It looks like Crohn’s disease in my lungs. Yes, you heard me right. I had no idea that was possible.

So, those are my excuses for not staying in touch with this blog. But, I’m back and hope to be better about it. I really like Ostomy Chic and appreciate knowing that there are some people out there interested in the same things as me!

One thing I have done over the past year was pin items I think are “ostomy friendly” on Pinterest. I should say that these are items that I think would work on me. I’m not trying to be prescriptive or anything! Just thought it would be fun to track items in this way. Feel free to visit my Pinterest boards if you are interested.

Ok, bye for now, my fellow friends in the blogosphere! See you soon, I hope.